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​​A DISEASE.
A GIFT.
A LIFE CHANGED.

​I was about 27 when I first noticed the symptoms: severe pain in my side, growing fatigue. When I finally sought help, I was given a blood test. The test usually spots 90 percent of those with the disease. Turns out, I was in the 10 percent of those for whom it didn’t.​

When the symptoms…

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